A Whiny Post Full Of Complaining
We’ve been home from UAB one week and this stupid PICC line isn’t working properly and I retract my previous rave review of this thing. Last Friday it came out of his arm and we had to go to the Emergency Room to have another one put in. Of course, this involved all sorts of drama with the Home Health Nurse trying to get someone at UAB to send orders to our local hospital; mind you, Friday was the beginning of Memorial Day weekend. Bless her heart, she persevered and got it done and we were only at the ER three hours, a record short visit for us.
But the big problem is that the container of antibiotics is not completely emptying over the 24 hr. period. I will not give all the details of this ongoing issue but just say that tomorrow the UAB Pharmacy is sending us a little portable pump that should fix the problem (famous last words).
In the meantime, we are concerned that Gorman cannot have the Avastin infusions until this infection is gone. We have surgery hanging over our heads if the infection doesn’t respond to the antibiotics. We have a check-up with Dr. Markert next Wednesday and, despite the fact that Gorman hasn’t been getting the full dose of antibiotics, we are hoping he will have improved enough to stop the talk of more surgery.
We are both so tired. Gorman can’t sleep on his right side because of the incision in his head and they have told him not to sleep on his left side because the PICC line is located there. So now he tries to sleep on his back all night. I challenge anyone to do that and get a good night’s sleep. If he’s not sleeping well, I’m not sleeping well. Plus the combination of infection and antibiotics causes him to feel crummy. The good news is that it’s 6:30 and time for a glass of wine.