Relying On Avastin

Gorman has his first Avastin infusion last week and it was pretty easy. He will receive it every two weeks at Southern Cancer Center, just a 25 minute drive. They also gave him in the drip a dose of anti-nausea medicine and Prednizone. The nurse warned him he may have trouble sleeping because of the Prednizone and, sure enough, he was wide awake at 4:00 the next morning and other mornings after that. This was quite a change because we both usually sleep 9 to 10 hours every night. I’ve tried to think if this has been caused by depression but honestly, I don’t think it is because we’re not depressed. Living with stage four brain cancer is just exhausting and takes a toll emotionally. Consequently we do sleep, sometimes helped by a Tylonol PM. Anyway, I hope he won’t have to get that steroid every time.

Gorman’s next MRI is July 8 and we will continue to get those done at UAB in Birmingham. Folks have asked why we don’t have them done locally now that he’s not in a clinical trial. Apparently it’s best to use the same machine every time. If we changed to a local hospital, we’d have to get copies of all his previous scans and start from scratch with a new radiologist. We want to stay linked in with Dr. Nabors at UAB, plus going every two months is a piece of cake compared to what we have been doing. Plus we know all the good restaurants in Birmingham now.

It appears that there really aren’t any clinical trials going on right now that would be of much use to Gorman. A lot of them involve Temodar, which we’ve already tried. Some are testing combinations of Avastin and other drugs but Dr. Nabors says nothing is showing much promise right now. There are some trials out there that are pretty much throwing the kitchen sink at the cancer, combining lots of different stuff but the patient’s quality of life comes into play there. Gorman says he doesn’t care to spend every day sick as a dog with no guarantee that it will help. Of course new trials pop up all the time and Dr. Nabors knows we’d like to hear of any possibilities, thus a good reason to stay under his care.

We’ve been at our condo at Orange Beach for several days. It had been several months since we had been there; we had almost forgotten how peaceful and relaxing it is. The sunsets were beautiful and we ate lots of good seafood. Now we’re back in Fairhope for a while.

Posted on May 13, 2013, in Uncategorized. Bookmark the permalink. 4 Comments.

  1. 4 a m is a little early 😦 but I bet the sunrise is pretty, the days certainly are and I hope you enjoy the sun on your face and the breeze in your hair. Love and peace. Elaine

  2. Joseph read this post and said to tell you he prays for his beloved Uncle G. He also said he totally loves that you have your priorities straight as knowing the best restaurants in a town is never overrated…and eat some seafood for him. Love, Joseph and his Mom ❤

  3. Cheryl Trumps

    Thanks for letting us know how you are doing. Please let Gorman know that I had same problem with the same steroid during my chemo treatments. My doctor told me to take a benedryl at bedtime, an over the counter med, and it works. Hopefully he won’t have to take every time, but in event he does I highly recommend it. Glad you all made a trip to the beach, water is so healing. You both inspire us so much! Our prayers continue for miraculous healing!! Always with you two in spirit ….Peace, Love & Prayers….Cheryl & Jerry

  4. Jimmy & Karen

    Not a day goes by that we don’t think of both of you and pray for God to continue His presence that will bring comfort and peace to you! After reading your note, we know He is answering! Sorry Gorman is up so at 4 a.m. “Early to bed; early to rise, makes one healthy, wealthy, & wise!” Karen & Jimmy

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