Phase Two of The Clinical Trial Begins
We drove to Birmingham last Thursday, where Gorman had UAB appointments that afternoon and Friday morning. Everywhere we went there was a glitch: EKG – they said they had no orders for him so we had to call the clinical research nurse who handles all this. Next to labs, where they had no orders for him to have lab work. Friday morning he was to have an eye exam, which always takes a long time and they have to dilate his eyes. When we arrived we were told that he didn’t have an appointment. Fortunately they worked him in pretty quickly. We’ve experienced some of this before but never to this extent. Needless to say, Gorman was most upset but it’s such a huge facility and I suppose things just fall through the cracks sometimes. However we ended with a visit with Dr. Nabors, which is always an upper. He’s so nice and good at explaining things, generally making us feel better.
Dr. Nabors and his people are so pumped at starting Phase Two of this clinical trial. I guess we are also since it must mean that the sponsoring pharmaceutical company is finding some success with this drug. The amount of money these companies spend on a clinical trial is mind-boggling. Gorman will continue his same regimen: he takes the trial drug, XL765, everyday and five days out of each month, he takes the chemo pills, Temodar.
Gorman is is the middle of that five-day chemo right now. He also has a terrible cold or sinus or something and is really feeling crummy. He’s calling his doctor this morning to see if he can call in something. Last week I had bronchitis, started on antibiotics and got enough better to make the trip to B’ham but I’m sure he caught it from me 😦
We now have to go to UAB only once a month which is a great relief. So now we’re busy talking about taking some kind of little trip after he gets over this round of Temodar and before next month’s UAB appointment. We have to cram in all the fun we can while we can.