The Schaffers Will Have A Very Merry Christmas
We have just returned from Birmingham, where we had a good, upbeat appointment at UAB. Gorman didn’t have an eye exam or an MRI this time but it was a longer visit where they draw blood, do an EKG, then give him the trial drug, XL765, wait an hour and repeat the blood work and EKG to see how he has responded. He’s doing fine and, in fact, his liver function is now in the normal range. While waiting to see the doctor, I met a man with the same diagnosis as Gorman, glioblastoma. This man had been in this same clinical trial, XL765, but said that his liver began to have problems and they had to drop him from the trial. After that conversation, we were doubly happy that Gorman’s liver numbers are back to normal.
The folks at UAB don’t tell us much about this clinical trial and are very close-lipped about how things are going. However, it was due to end this month but they are “rolling it over” to begin a new phase and Gorman will be in that so we assume that means they are having success. We count it as a real blessing that he will continue getting this drug. As we always say, one more layer of hope. If I’ve already reported this, please forgive me. I’m in a hurry and didn’t have time to go back and read my previous posts.
So we don’t return to UAB until January 23, when Gorman will get another MRI. It will be nice to have a break from driving I-65. Of course he takes the drug everyday and still takes the chemo pills, Temodar, five days each month. That will happen the day after Christmas but he has so little in the way of side effects that we’re not anticipating any problems.
Today we are running around like crazy and packing because we leave tomorrow for California. We will spend Christmas with Charlie, Kathleen and our precious little Ryland. Also, Grady will fly out from Colorado to join us so we will have a wonderful Christmas. I can’t help but think about 11 months ago, when I didn’t think Gorman would still be with us at Christmas. Thanks be to you, dear God, for the best present I could ever have!