The Clinical Trial Begins

Sorry to be so tardy in posting an update on our trip to UAB.  Several people have asked me about it but life is crazy these days.

So, we appeared at the Clinical Research Unit at UAB this past Monday at 7:00 a.m. and were there for 10 hours.  Gorman’s nurses were so friendly but professional and he began to feel at ease after being very anxious about this whole process.  We had a private room and our very own nurse.  They had to take blood tests throughout the day so they put in a port (I guess that’s what you call it) so they only had to stick a needle in his arm that one time.  They also had to do EKGs several times and kept him hooked up to that.  He was given his first dose of the trial drug, XL765, in pill form and 30 minutes later he took his chemo pills, the Temodar, along with Zofran, anti-nausea med.  The continual testing was to see if he was experiencing any adverse effects from the drugs but he did just fine, especially after he was allowed some coffee around 10:00.  So basically his day consisted of staying in bed and reading a book.  Of course, he was covered with his St. James prayer quilt there and I’ll post of photo if I can figure out how to do that.  We went back to the hotel, drank a glass of wine, ordered room service and thanked God for a good day.

On Tuesday morning, we went back so they could do more testing (blood work, EKG, etc.) and we were on our way back to Fairhope by late morning.  It was really easier than we had expected and we didn’t have to stay as long as expected.

Gorman will continue to take the XL765 everyday for the next year unless some problem arises.  We have to keep a diary of his doses and any other medications he takes and, of course, any symptoms that might develop.  He is taking his five days of Temodar right now; will be finished tomorrow, at least for this month.  Thanks to Zofran and Phenergan, he is doing okay; not great but okay.  The fatigue and nausea come and go but this month seems a little easier than last month.

We hope to go to church tomorrow morning if Gorman feels up to it.  Then we will leave tomorrow afternoon to go back to B’ham.  Originally we were scheduled to go up there every week for three months but it turns out that sometimes we can go to the local LabCorp to have  blood work done, eliminating one of those weekly trips each month.  That will be a big help.  After the first three months, we will return every other week, staying sometimes one, sometimes two days.  At various points, Gorman will get an eye examination.  Also he will get an MRI every other month.  After that we only have to go once a month.  If that’s confusing to me, I know it is to all who read this.  Then I remind myself of this:  every morning when he takes that XL765, I get a mental image of a wall going up inside him, blocking those molecules that want to feed the tumor and if that truly is happening, all this is a picnic!

Posted on June 16, 2012, in Uncategorized. Bookmark the permalink. 7 Comments.

  1. Prayers continue…the B/B girls with one missing met last Monday and even as we missed you we remembered the Clinical Trials were beginning. So thankful you had good visits with your children. I’ve been concerned about Grady and the fires around Fort Collins. Know, really know, how often Bill and I think about and pray for you. Sending lots of love.

  2. Heidi & Norbert Dalhof

    What a formidable fight Gorman is taking on to beat this beast called cancer. Philip was glad to see you in Ft. Collins. I am especially pleased that the boys are room mates once again.

  3. What great spirit you have and I will try to visualize with you. God’s Speed. Susan Lunardini

  4. As I was reading this update, several response popped to mind.

    You commented on having your own room and your own nurse. For some reason, I recalled your story about giving birth to Charlie. That was in the days where the dad was pretty much left out in the waiting room. They rolled you into an empty room and… there you were. All by yourself! But then, in came someone–possibly a nurse but I don’t think so. As I recall, she was young and had a Coke in her hand. and she introduced herself as your “companion.” (Now, after all of this, I really hope this story belongs to you!).

    Also I voiced a big “hooray” for ports and for walls! Keeping you in our prayers, Pat

    • Pat, I cannot believe you still remember that story but, yes, that is how Charlie came into this world about 40 years ago!

  5. You are right up there in the front of our prayers. In fact, I dreamed I saw you both last night and you looked great! Here’s hoping I can predict the future! It looks like you will be burning up that road to Birmingham while the “wall” is getting built. So we will pray for happy travels too.
    Love, Betsy

  6. Robert & Betty McLendon

    Sounds like you are in good hands and i’m glad you are feeling well with all the meds. You are still being lifted up and i know the Great Physican is in charge.

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